C.H.I.L.D is a nationally recognized charitable organization for parents or care providers of a child with limb differences. Our main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.

Parents can then exchange valuable medical information, as well as, the names of doctors, clinics and medical resources or research programs. Families provide each other with emotional support and they don't have to feel so alone when they have each other to reach out to in time of need.

We have as a continuous goal, to provide support, share experiences and supply information to parents, affected children and their siblings. We choose to focus on the individual child and the challenges they may face. We emphasize their abilities, not their disabilities.

In our support work, we often may inform families of regional services and resources that are available but do not choose to endorse any institution or specific medical treatment. One of our priorities is to reach parents of the newborn with a limb difference. New parents can be given hope and encouragement through our extended network of parents.

Through membership, parents are able to meet other members whose children may have limb differences. Meeting other parents is always a great way to help you cope as you can share your experiences and advice can be offered. Also your child can make new friends with other children who also have a difference.

We can provide members with over the phone or in person counseling, all members doing so are volunteers and are here to listen. Members are also invited to social outings and general meetings. We have a quarterly newsletter that is sent out to all members and contains information about C.H.I.L.D., recent outings, new members, members stories and more.

FACTS ABOUT LIMB DEFICIENCY

•Approximately 1 in 10,000 children across Australia yearly is born with a limb defect.

• One common condition is called Amniotic Banding Syndrome. A thin string gets caught and wraps itself around the limb cutting off a blood supply causing the limb to amputate in the uterus or stop growing.

• Congenital Limb Deficiency is when the child is born with the missing or deformed limb.

• Actual limb deformities can be caused by something in the environment, the mother being ill with such things as German measles or a chromosomal defect.

C.H.I.L.D Incorporated - PO Box 130, Blaxcell NSW 2142 - Email: enquiries@childorg.net.au
ABN: 76 560 711 947 - All donations over $2.00 are tax deductable

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